Resources for Stroke Survivors

family celebrating at outdoor party

Family and friends are usually caregivers for stroke survivors. But eventually they must go back to work and their own lives. So informal or formal support can help ease the burden for survivors and caregivers.

Informal (or natural) support

Informal support (or natural support) is help, information, advice, resources or opportunities from friends, neighbors, acquaintances, family members, co-workers, etc. Informal support can also include things we use to help with daily life, like alarm clocks and planners.

This kind of support builds on relationships when people share common tasks, recreation and purposes. Examples include:

  • Connecting with people in your religious community
  • Getting a ride to work with a neighbor or family member
  • Getting a phone call reminder from a friend
  • Using a grocery delivery service
  • Sharing a task with a co-worker
  • Setting a timer or alarm clock

Formal support

Stroke support groups

Stroke support groups provide social opportunities, help solve problems and link you to resources. Find a stroke support group in your area.

Online stroke support groups

These groups often provide online support 24/7 for stroke survivors and family members. Visit the Support Network online community.

Aging and disability services

All states have government offices that provide referrals and resources for the aging and disabled after a stroke.

Medicaid Home and Community-Based Services Waiver Program

If you qualify for medical assistance or Medicaid, find out if your state has a HCBS Waiver Program. It allows the state to provide an array of home- and community-based services that help Medicaid beneficiaries live in their community instead of an institution. Each state has different programs and eligibility criteria, so contact your local Department of Human or Social Services for specifics in your state.

Rehabilitation Services Administration - Independent Living Services

Many agencies throughout the country have government-funded programs through the RSA. They include counseling, medical and psychological services, job training and other individualized services. For more information, contact the RSA in your state

Looking for Stroke Information?

If you are a stroke survivor, caregiver or a family member looking for information and support, please connect with our trained stroke specialists through Stroke Family Warmline.

If you are a group, organization or a hospital system looking for stroke education materials, order them here.

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