Hypertrophic Cardiomyopathy Personal Stories

Facing hypertrophic cardiomyopathy can be a daunting task. You have every reason to be hopeful and positive about your outlook. You’re in good company: hear from other patients sharing their experience with HCM.

Hypertrophic cardiomyopathy survivor Alison Conklin. (Photo courtesy of Alison Conklin)

As a teen, she saw her mom die from the same heart problem she inherited
Decades later, her son saw her collapse. But thanks to what was new technology at the time, a device implanted in her chest saved her. Read Alison's story.


Sara Amaya-Revelo (left) and her brother, Michael. (Photo courtesy of Sara Amaya-Revelo)

After brother's diagnosis, New Jersey woman unlocks her own
Ongoing, troubling symptoms are explained away – and then put on a back burner – before she learns she has hypertrophic cardiomyopathy. Read Sara's story.


Kathryn Redmond and her partner, Ethan. (Photo courtesy of Kathryn Redmond)

Patient won't let diagnosis of hypertrophic cardiomyopathy define her
After years of visits to cardiologists, Kathryn Redmond 'finally had a name' for her health troubles. Read Kathryn's story.


Kristen Criss

Twelve years after sister's sudden death, a clue from her mom's death certificate
When Kristen Criss met with the medical examiner after an undiagnosed heart condition killed her sister, he had an urgent message: Get your heart checked. It took 12 years before she learned she had hypertrophic cardiomyopathy. Read Kristen's story.


After years of symptoms, Shawn Lewis finally received diagnoses of heart failure and hypertrophic cardiomyopathy.

Chef's persistent symptoms at last lead to hypertrophic cardiomyopathy diagnosis
After years of symptoms, Shawn Lewis finally received diagnoses of heart failure and hypertrophic cardiomyopathy, which led to a temporary heart pump and eventually a heart transplant. Read Shawn's story.


Adam Elliott — and his doctors — thought he suffered from anxiety. But his heart palpitations, chest pain and irregular heartbeats were missed signals of hypertrophic cardiomyopathy.

Patient hopes to solve 'puzzle' of his heart condition
Adam Elliott — and his doctors — thought he suffered from anxiety. But his heart palpitations, chest pain and irregular heartbeats were missed signals of hypertrophic cardiomyopathy. After finally getting a proper diagnosis, Elliott now focuses on his health and being with his two boys. Read Adam's story.


Gwen Mayes is a survivor of hypertrophic cardiomyopathy.

Survivor powers through 'hell,' thrives on the other side
Gwen Mayes always had hypertrophic cardiomyopathy. But she didn't always know it. And once she did, she reluctantly shared how the symptoms terrorized her. Years later, she helps others talk about their health. Read Gwen's story.


Sharon Bond flexing her muscles

Walking the talk
After undergoing surgery to treat hypertrophic cardiomyopathy (HCM), Sharon Bond founded a non-profit organization dedicated to raising awareness about heart disease. Read Sharon's story.


Support That Lifts You Up

Our online community of survivors and caregivers is here to keep you going no matter the obstacles. We’ve been there, and we won’t let you go it alone.

human ladder to climb a wall

Collaborator

The Hypertrophic Cardiomyopathy Association participates in the American Heart Association’s Hypertrophic Cardiomyopathy initiative to improve HCM awareness and care.

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