Resources and Information
There can be fear, apprehension and uncertainty that stroke survivors and families face in the aftermath of stroke. Questions often arise about what life changes to expect after stroke and how to gain control and independence in everyday living situations.
It’s important to become aware of common effects of stroke and how to improve the emotional and physical well-being of both the stroke survivor and caregiver.
To help enhance quality of life, learn more about life after stroke through these resources and information.
Clinical Trials – A clinical trial is a complete investigation of a medicine or medical device to determine both safety and efficacy before it is made available to the public. Search the latest clinical trials available for stroke survivors through the Clinical Trials Resource Center. Read more.
Effects of Stroke – The abilities that will be lost or affected by stroke depend on the extent of the brain damage and where in the brain the stroke occurred. Learn about areas within the brain that are responsible for a particular function or ability and how this can be affected by stroke. Read more.
HOPE: The Stroke Recovery Guide – The crucial and practical information and resources in this comprehensive guide will empower you to take charge of your life and become an active participant in your recovery. Learn about how to face daily tasks at home, dressing and grooming tips, ways to make eating easier and dealing with skin care problems. Read more.
National Stroke Association Resource Directory – Search this state and national database for resources to help with everything from housing modifications to travel to dating to insurance issues. Read more.
Online Education – New! Learn easily and at your own pace about how to manage and cope with recovery lifestyle and medical issues. These easy-to-view Web presentations are led by teams of experts providing information on specific issues related to stroke recovery:
- iHope – This series of Web presentations and "Ask the Experts" Q&A sessions will cover topics such as depression after stroke, how to deal with different types of pain and mobility problems and the importance of self-care for caregivers. Read more.
- Living After Stroke – The transition to home and the community can appear daunting and challenging. To ease into life after stroke, the Living After Stroke Web presentations will help you learn how to make kitchen, bathroom and total home modifications for safety and comfort, what transportation options are available and how to recover and adjust emotionally. Read more.
Post-stroke Fact Sheets – Educate yourself. These individual fact sheets cover topics such as choosing the best stroke rehabilitation provider, discovering your dietary needs, developing coping skills to manage daily living, dealing with emotions and more. Read more.
STARS (Steps Against Recurrent Stroke) –Within 5 years of a first stroke, the risk for another stroke can increase more than 40%. Learn how to reduce your risk for a recurrent stroke by making lifestyle changes and managing medical conditions that could your increase stroke risk. Read more.
Rehabilitation – The goal in rehabilitation is to relearn basic skills that the stroke may have taken away – skills like eating, dressing and walking. There are many types of rehabilitation available. Read more.
Stroke Advocacy Network – work side-by-side with stroke survivors and caregivers in speaking out to local, state and national decision makers on key issues that will help restore dignity to survivors and improve their quality of life. Read more.
Specific Post-Stroke Information by Topic
Communication Problems and Aphasia – Another common problem for survivors, aphasia affects the ability to speak and comprehend words. Here are tips and resources for dealing with aphasia in daily life. Read more.
Mobility – Many survivors experience paralysis and/or balance problems of some sort. Here is information about different types of mobility problems like spasticity and how to build safety into your home and daily lifestyle. Read more.
Neglect – Some survivors neglect the side of their world corresponding to the side of their brain which was injured by the stroke. For example, the stroke survivor with left-sided neglect may ignore the left side of the face when washing or not eat food on the left side of the plate. Read more.
Pediatric Stroke – People of any age can have a stroke, and children can experience strokes differently than adults do. Learn the symptoms, treatments, effects and management of childhood strokes. Read more.
PBA – Pseudobulbar Affect (PBA) is a medical condition that causes sudden and unpredictable episodes of crying, laughing or other emotional displays. PBA is also called Involuntary Emotional Expression Disorder (IEED), Emotional Lability or emotional incontinence. Read more.
Stroke and Social Security Disability Insurance – Learn whether you are eligible for Social Security Disability Insurance (SSDI), plus discover SSDI benefits, how to apply, tips for financial planning and more in this indispensible guide. Read more.
Vascular Dementia – Many survivors experience loss of cognitive function, or intellectual abilities, often called vascular dementia. Learn symptoms and how to be diagnosed and treated effectively. Read more.