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Teri D.


Survivor

My CADASIL story in 5 minutes

It was Saturday, March 3, 2003. I laid down to take a nap. When I awoke an hour later, my left hand was numb and wouldn't wake up.

I drove to the hospital remembering my mother and her small strokes. The hospital staff told me I probably pinched a nerve in my neck. My blood pressure was always normal to low, so those findings were not surprising to me. I was sent home and told to see the doctor on Monday. Sunday morning I could not talk or walk and I felt terrible. I drove back to the hospital and the neuorologist that took care of my mom was there and on the phone with the neurologist at the University of Pennsylvania. I was given an MRI with contrast. The doctors read the MRI as Multiple Sclerosis. I was taken to Bryn Mawr Rehabilitation Hospital on Monday and remained there for 30 days. I worked
hard learning how to walk again; seven days a week, 6 hours a day.

One of the doctors had heard of CADASIL and was convinced that was my condition, not MS, and I was treated for a stroke. Now we know that my mom and her dad had CADASIL. I have 5 children and 4 of them have symptoms. Please help us find a cure for CADASIL.

Sincerely,
Theresa Dyer

 

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