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SURVIVORS' STORIES
Kate Adamson

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National Stroke Association

National Stroke Association - Brain Alert

INSIDE

Steps Against Recurrent Stroke (STARS)
STARS Web Presentation
Second Chances Study
PRoFESS Study
New Presidential Coin

StrokeSmart Magazine
My Turn Discussion Guides
ABCD2 Tool
Spanish Explaining Stroke

The Difference You Can Make

Dance for Dignity 2008
Ben Kaplan: Actively Surviving
Stroke on "Health Corner" Newsweek runs PSA
Life After Stroke

National Men's Health Week

Grand Rounds
Nurse Modules
ABCD2 Score

Calendar of Events

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JUNE 2008     


Steps Against Recurrent Stroke (STARS)


As a stroke survivor or a caregiver for a stroke survivor, did you know that having a stroke puts you at greater risk for another stroke? Now, National Stroke Association has partnered with Bristol-Meyers Squibb Sanofi pharmaceuticals to develop the STARS program. STARS stands for Steps Against Recurrent Stroke and is a program to make sure you know there is so much you can do to reduce your risk for a recurrent stroke including:

  • Stop smoking

  • Keep blood pressure, cholesterol and diabetes under control

  • If you have an irregular heartbeat, a condition called AF, work with your doctor to control it

  • Eat a healthy diet

  • Increase physical activity

One very important thing you can do is follow your doctor's directions and take your medicine, even if you feel fine.
Brain Alert Image - STARS

You don't have to have another stroke. Be a Stroke Smart Star. To get a pamphlet and more information on the STARS program contact National Stroke Association at 1-800-STROKES or www.stroke.org/STARS.


Steps Against Recurrent Stroke (STARS):
Free Archived Web-Based Presentation for Stroke Survivors and Families


Available online June 23rd, 2008

Presenter: Dr. Salman Azhar, MD
Director, Stroke Center - Lutheran Medical Center, Brooklyn, NY

Having a stroke makes a person more likely to experience another one. The good news is that 80% of strokes are preventable. This online presentation will help participants:
  • Take a closer look at the physical changes the brain and body undergo with a stroke
  • Review common medication classes that are used to treat stroke, and
  • Explain the importance of medical compliance and lifestyle changes in preventing recurrent stroke.

For more information go to: www.stroke.org/STARSwebcast  


Second Chances Study: A New Lease on Life

Brain Alert Image - Second Chances


In April of 2008, the Second Chances study was completed. The study was developed to help patients, caregivers and loved ones understand the effects of surviving a stroke.

One of the more interesting facts that came from the Second Chances study is that 3/4 of stroke survivors in the sample stated they were more satisfied with their lives since their stroke. We believe that this is because many of them took advantage of their second chance at life and become aware that there are now many therapies available to help them increase their quality of life as they continue on their lifelong stroke journey.

But the situation for the caregivers is much different. Up to half of the caregivers in the study reported that they were depressed, while only about 20% of the stroke survivors reported issues with depression. Similar numbers for caregiver depression have also been seen in research conducted by National Stroke Association. We believe this may be because caregivers are so busy taking care of the stroke survivors that they aren't taking the time for themselves. It is important for caregivers to put themselves first, because if they are doing well, they will be better caregivers as well.

The Second Chances study, which was funded by Boehringer Ingelheim Pharmaceuticals, brings to light the issues facing stroke survivors and caregivers. The study results help us all to be more aware of the needs and desires for this group. We must always remember that stroke is a lifelong journey. Stroke survivors and caregivers must be empowered to demand the latest and best information on available treatments so that they can enjoy their best quality of life and be able to prevent a secondary stroke. Much of the latest treatment information can be found at National Stroke Association's website www.stroke.org.

More detailed information on everything from movement to communication to sexual issues can be found at the Second Chances study information site at http://www.secondchancesstudy.com/.


PRoFESS


The results from the first head-to-head comparison of Aggrenox® and Plavix® were released on May 14th at the XVII European Stroke Conference in Nice, France. PRoFESS® (Prevention Regimen For Effectively avoiding Second Strokes) is the largest study ever done on secondary stroke prevention.

The primary question posed in the clinical trial was: Which is better at preventing recurrent stroke, Aggrenox® or Plavix®? The answer: there is no clear winner. The results were similar for each. So, if you have been prescribed one of these drugs your doctor would know best which one is right for you.



New Presidential Coin Helps Highlight National Stroke Awareness Month
Brain Alert Image - Coin On May 14th, National Stroke Association joined the United States Mint in celebrating the release of the new President John Quincy Adams $1 coin. Our nation's sixth president suffered a stroke on the floor of the House of Representatives in 1848. He died just days later.

John Quincy Adams served as president from 1824 until 1828. He then was elected to another term in Congress where he suffered a stroke. According to the US Mint, this sixth coin in the Presidential series may be used for everyday commerce but is also intended to be an educational tool. For more information, go to: www.stroke.org/coin.



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NEW FOR YOU 


StrokeSmart™ Magazine

Brain Alert Image - SSCover JA 08

Stroke can change your perspective, teach you important life lessons, or give you a new purpose. At least, that's what happened with the people in the next issue of StrokeSmart™. We know Bonnie Franklin as an actress, but to Samuel B. Franklin, she was a loving caregiver. Sharing her father's stroke recovery journey changed Bonnie's view of the world, she says for the better. When Jason Ledlie was a kid, his dad had a stroke while training for a triathlon. Now, as an adult, Jason is raising money for stroke education in a way that pays tribute to his
late father. And Wakie McBride has found a new mission since having a stroke - to spread hope to other survivors. Because she knows from experience that hope is an important part of recovery. Read about these people and more in the July/August 2008 issue of StrokeSmart™.


My Turn Discussion Guides

Brain Alert Image - My Turn

With the May/June 2008 issue, National Stroke Association launched discussion guides to help StrokeSmart™ readers apply the material they see in the magazine to their own lives and situations. Called My Turn, the discussion guides are linked to specific StrokeSmart™ articles and include a list of questions to discuss with a stroke support group or family. For a copy of the My Turn discussion guides on self-advocacy and medicine management, go to www.stroke.org/myturn or call (800) STROKES or (800) 787-6537.



ABCD2 Tool

Brain Alert Image - ABCD


The ABCD2 tool is a new tool that has been professionally validated to predict the risk of having a stroke following a transient ischemic attack (TIA). This easy-to-use tool has been made available for the use of medical professionals. The tool will also be available for download from the National Stroke Association website at http://www.stroke.org/.


"Explaining Stroke" Now in Spanish

National Stroke Association's brochure "Explaining Stroke" is now available in Spanish. An easy-to-understand guide to stroke, "Explaining Stroke" includes causes of stroke, types of stroke and how to reduce your risk for stroke. Visit National Stroke Association's online store for more information: www.stroke.org/SHOP
Brain Alert Image - Spanish Explaining Stroke


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THE DIFFERENCE YOU MAKE

With your tax-deductible donation to National Stroke Association, you help bring the gift of hope to millions of stroke survivors and their loved ones. There are many ways to show you care:
  • Donate online at www.stroke.org/donate or mail a check payable to National Stroke Association to the address below. (A gift of $25 or more entitles you to a year of our bimonthly magazine, StrokeSmart.)

  • Make a special gift to mark a special occasion in the life of a loved one or friend - holidays, anniversaries, graduations and birthdays are excellent opportunities for giving. You can also honor the memory of someone who passed following a stroke.

  • Join our Heritage Society by remembering National Stroke Association in your will. (Talk with your financial advisor for more details.)

Remember, the donation you make today could make a big difference for a loved one - or for you - tomorrow!
Thanks for caring.



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ON THE GO FOR STROKE 


Dance for Dignity 2008

Dance for Dignity 2008 was a grand success.

Held in Denver, this year's event was a great success, with a 30% increase in both attendance and money raised, compared from the inaugural 2007 event. On May 9, 2008 we saw 120 people and raised just over $12,000 for National Stroke Association.

Dance for Dignity was created to give stroke survivors a place to come with their friends and family to a place where they could let their hair down and enjoy an evening where they could dance without fear of being judged. Dance for Dignity was created in 2007 by young stroke survivor Melanie Wheless.


Ben Kaplan: Actively Surviving

Strokes can happen at any time, to most anybody, even if you're only five days old and an identical twin. This is Ben Kaplan's story. Or part of it anyway. Because after his stroke, Ben was diagnosed with both hydrocephalus and cerebral palsy. And it was not until Ben was seventeen was he able to make the correlations of hydrocephalus and cerebral palsy with his stroke as an infant.

As an adult, Ben has been active in local politics, advocating for other stroke survivors by sharing the latest news developments with others. With his Bachelor's degree in Communications, Ben has worked professionally in PR and radio. He has also contracted for biotech companies, doing media research. Currently, Ben is working with the United Cerebral Palsy Foundation.

Through it all, Kaplan has stayed positive. He feels fortunate for his station in life. By using restraint therapy and staying abreast of current developments in stroke therapy, Kaplan has remained strong and determined.
Brain Alert Image - Kaplan


Stroke Segment to Air on Lifetime Television's "Health Corner"

On May 11th, Lifetime Television's "Health Corner" with host Leeza Gibbons aired a program on stroke survivor and Miss Arizona 1998, LeAnn Hendrix. Chronicling Ms. Hendrix's stroke and recovery, National Stroke Association's CEO Jim Baranski spoke on the importance of recognizing stroke symptoms.

Brain Alert Image - Hendricks


The program will air again on Lifetime Television on Sunday, June 22, 2008 at 8:30 a.m. Central Standard Time.


National Stroke Association in Newsweek

We are pleased to announce that National Stroke Association's press release for National Stroke Awareness Month has been running in Newsweek (circulation approx. 3,160,000 weekly). The advertorial ran in the May 5th issue, and then again in the May 26th issue.


Change in the Weather: Life After Stroke

Mark McEwen, a fixture on CBS's The Early Show from 1987 to 2002, shares his stroke recovery journey in this inspiring book, Change in the Weather: Life After Stroke. In 2005, misdiagnosis delayed his stroke treatment and nearly cost him his life. Now a triumphant stroke survivor, McEwen shares insights into his life and what he wants you to know about stroke.
Brain Alert Image - McEwen Book "For the six million stroke survivors in this country, this is a book about humility, dignity, courage and never giving up. For the caregivers, it is a book about the trials and tribulations you have come to know all too well, and you will realize you are not alone. For the rest of us, it is a book about what you can do to save a life, including your own. Kudos to celebrity Mark McEwen for the courage to hare his stroke recovery journey. He is a true champion, committed to restoring dignity to stroke survivors."

- James Baranski, CEO of National Stroke Association

The book can be purchased for $26 at http://www.amazon.com/, http://www.bn.com/ and at your local bookstore.



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THANK YOUR BRAIN 


National Men's Health Week: June 9-15, 2008

This year, June 9-15 is National Men's Health Week.

This is a good opportunity to get to your doctor for a check-up, or encourage your loved ones to get to the doctor, to prevent against a possible future stroke. Afterall, incidence of high blood pressure rises in men over the age of 45. High blood pressure can lead to stroke.

It's especially important for African American males to get regular check-ups. Compared with white males 45 to 54 years old, African Americans males in the same age group have a threefold greater risk of ischemic stroke. More than that, African Americans are twice as likely to die from stroke as Caucasians. The rate of first strokes in African Americans is almost double that of Caucasians.

Be sure to get to your doctor, for an up-to-date evaluation of your health.



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STROKE PROFESSIONALS 


New Professional Educational Programs

Grand Rounds

Brain Alert Image - Grand Rounds

National Stroke Association's Professional Education Department has leaped into Spring 2008 with several exciting new educational programs.

The Symptomatic Intracranial Stenosis: Aggressive Risk Management Grand Rounds will begin in early summer 2008. This Grand Rounds is an update of the successful 2007 Intracranial Stenosis Grand Rounds and includes information on the SAMMPRIS trial.

Mid-summer 2008 brings the release of All About Stroke-Stroke for Primary Care Professionals (PCPs). This pilot program is a half-day symposium that will take place at four Stroke Centers. The goal of this program is to further educate PCPs on primary and secondary stroke prevention guidelines and best practices. The program will help strengthen the relationship, and thus patient transition, between the local Stroke Center and PCPs. If you are a hospital with strong PCP relationships please contact Lori Cavallo at lcavallo@stroke.org for consideration.

Late-summer National Stroke Association will kick-off our most extensive Grand Rounds program to date, Recurrent Stroke Prevention: An Update on the Evidence and Opportunity. These Grand Rounds will be offered at 140 Stroke Centers nationwide. If your hospital has an interest in participating, please contact Valerie Siebert-Thomas at vsiebert-thomas@stroke.org.

Watch for details on the 2008 Regional Meetings: Stroke the Full Continuum of Care and the 2008 Public Health Summit on our website: www.stroke.org/MEET 


Online Stroke Nurse Education Modules Coming in 2008

National Stroke Association and its professional partners are working diligently to complete the development and testing of a series of accredited online stroke nurse education modules that will be available in mid-2008.

The modules are designed to improve stroke patient care and outcomes by providing evidenced-based and best-practice nursing education to those that deliver bedside care to patients at all points of the care continuum. The interactive modules will cover topics ranging from "Stroke 101" to "Rehabilitation Nursing for Stroke" - everything stroke care teams will need to provide quality care and obtain or maintain primary stroke center certification.

Questions or comments about the Stroke Nurse Education Modules project can be directed to Jill Thiare, SCN Director at (303)754-0908 or jthiare@stroke.org.


ABCD2

The ABCD2 score was developed and validated by Dr. Clay Johnston and Dr. Peter Rothwell to predict the short-term stroke risk after a transient ischemic attack (TIA). The score is optimized to predict the risk of stroke within 2 days after a TIA, but also predicts stroke risk within 90 days. Now Dr. Johnston and National Stroke Association have collaborated to produce an easy use tool based on the ABCD score. The tool enables clinicians to calculate the ABCD2 score by summing up points for five independent factors. National Stroke Association will be mailing a copy of the tool to 165,000 healthcare professionals. The tool will also be available for download from the National Stroke Association website at www.stroke.org.





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Calendar of Upcoming Events



CALIFORNIA

June 19
Stroke Awareness Benefit Concert

Bakersfield
Fundraiser to benefit National Stroke Association
More Info: http://www.retiproductions.com/

June 25
Stroke Awareness Community Education Seminar

Long Beach
Long Beach Petroleum Club, Terrace Room

July 9
Community Consultation-Public Meeting

Mission Hills
Providence Holy Cross Hospital
Intended Audience: Caregivers & Family Mem., Healthcare Profess., Gen. Public
More Info: http://www.providence.org/

September 4
Hope After Stroke Symposium

Long Beach
Renaissance Long Beach
National Stroke Association event for stroke survivors, caregivers and families
More Info: www.stroke.org/Meet_Has or call 1 (800) 787-6533


GEORGIA

October 15
Hope After Stroke Symposium

Atlanta
Renaissance Concourse Hotel
National Stroke Association event for stroke survivors, caregivers and families
More Info: www.stroke.org/Meet_Has or call 1 (800) 787-6533


ILLINOIS

September 5 - 7
Stroke Camp

Algonquin
Northern Illinois Camp Grounds
For stroke survivors, caregivers and families
Contact: Alexian Brothers (847) 981-3630


KENTUCKY

August 26th
The Annual Extravaganza Tasting Event

Sponsored by the KY & S. Indiana Stroke Association, a chapter of National Stroke Association
The Olmsted on Frankfort Avenue
Kentucky and Southern Indiana Stroke Assoc.
More Info: http://www.strokekyin.org/ or Carrie (502) 499-5757


MINNESOTA

September 20
Hope After Stroke Symposium

Minneapolis
Sheraton Bloomington Hotel
National Stroke Association event for stroke survivors, caregivers and families
More Info: www.stroke.org/Meet_Has or call 1 (800)787-6533


NEW YORK

June 19-21
Speaking Out Conference

New York City
For people with aphasia, caregivers and rehab professionals
Sponsored by National Aphasia Association and New York University
New York University
For details call (800) 922-4622 or go to http://www.aphasia.org/ or email ganzfried@aphasia.org

September 14
Judy's Run for Awareness

Kings Park
5K Run/Walk
Sunken Meadow Park
More Info: Call Bob at (631) 255-2516 or visit www.stroke.org/EVJudy


OREGON

August 2
Strokes for Stroke Golf Tournament

Portland
Stroke Awareness Event
Wildwood Golf Course
For information visit www.stroke.org/EVMeadowGolf


PENNSYLVANIA

June 1
The Dr. Howard Mazer Memorial Strides for Stroke 5K Run/Walk

Philadelphia
Sponsored by the Delaware Valley Stroke Council
Art Museum Circle & MLK Drive
For details call (215) 772-9040 or go to www.phillystroke.org/stridesforstroke.asp


WASHINGTON

November 15
Acute Cerebrovascular Disease and Management 2008

Spokane
Sacred Heart Medical Center
More Info: (509) 474-4567 or (800) 442-8537

November 2008
Hope After Stroke Symposium

Houston
Date and location to follow
National Stroke Association event
More Info: www.stroke.org/Meet_Has or call 1 (800) 787-6533

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