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Advocates Join Forces to Fight Spasticity

Monday, June 13, 2016

Imagine a charley horse that won’t go away. That’s what people with spasticity experience and now there’s help in sight with the founding of the national Spasticity Alliance.

National Stroke Association has brought together advocacy organizations that serve people affected by stroke, traumatic brain injury, cerebral palsy, spinal cord injury and multiple sclerosis to raise awareness about spasticity and help patients to resume normal daily activities.

A website dedicated to providing information and resources to help ease spasticity’s muscle spasms and other symptoms, www.spasticityalliance.org, launched during Spasticity Awareness Week, June 13-19.

The Spasticity Alliance includes: the Brain Injury Association of America, Multiple Sclerosis Association of America, United Cerebral Palsy and United Spinal Association.

Symptoms of spasticity include stiff, rigid muscles, involuntary contractions or muscle spasms which have been likened to a charley horse that never ends.

“Spasticity is common for people with many different medical conditions so it’s important for us to come together in a united front to help those affected by this debilitating condition. I personally have seen what spasticity does to a person when my own father experienced spasticity in his left arm following his stroke ,” said Robyn Moore, CEO of National Stroke Association. “While there is no cure, we want to let people know that a combination of therapies and medications can treat the symptoms and restore quality of life for thousands living with spasticity.”

The Spasticity Alliance will engage survivors and their caregivers through a brand new  website featuring a variety of educational resources, multimedia tools and patient stories—all geared to provide helpful information and resources to people with specific conditions.

The Spasticity Alliance web site aims to:

  • Provide a clearinghouse of best-of-class patient educational tools and resources
  • Act as the go-to source for spasticity-related conditions
  • Increase awareness of spasticity
  • Address the onset of spasticity and its symptoms
  • Offer management options which can include a combination of medications and therapies
  • Empower patients and caregivers to discuss their symptoms with their healthcare professionals
  • Build a strong alliance of patient advocacy organizations to create a united voice for spasticity messaging, tools and resources.

Visit www.spasticityalliance.org to learn more.

Contact:  Julia Richards, Senior Manager, Stroke Survivor Programs

National Stroke Association

303-754-0906

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